Author information

• ¹Hepatology, Leeds Teaching Hospitals Trust, Leeds, GBR.
• ²Medical Genetics, University of Cambridge, Cambridge, GBR.
• ³Hepatology, Leeds Liver Unit, St. James's University Hospital, Leeds, GBR.
• ⁴Gastroenterology and Hepatology, Portsmouth Liver Centre, Queen Alexandra Hospital, Portsmouth, GBR.
• ⁵Hepatology, Royal Free Hospital, London, GBR.
• ⁶Hepatology, Centre for Liver Research, Newcastle University, Newcastle upon Tyne, GBR.
• ⁷Hepatology, Regional Liver Unit, Belfast Health and Social Care Trust, Belfast, GBR.
• ⁸Chief Executive Officer, The PBC Foundation, Edinburgh, GBR.
• ⁹Hepatology, Gwent Liver Unit, Royal Gwent Hospital, Newport, GBR.
• ¹⁰Hepatology, Forth Valley Royal Hospital, Larbert, GBR.
• ¹¹Hepatology, University Hospitals Birmingham NHS Foundation Trust, Queen Elizabeth Hospital, Birmingham, GBR.
• ¹²Gastroenterology, St. Mark's Hospital, London, GBR.

Abstract

Primary biliary cholangitis (PBC) is a debilitating chronic liver disease that progresses to cirrhosis with attendant complications in a substantial proportion of patients. It is a major cause of liver-related morbidity and mortality in the United Kingdom (UK). The British Society of Gastroenterology (BSG) published guidelines on PBC management, which included key audit standards. Therefore, we propose the first UK-wide audit of the management of PBC, sanctioned by the BSG and the British Association for Study of the Liver (BASL), to benchmark NHS trusts and health boards against these audit standards as a guide to targeted improvement in the delivery of PBC-related health care.